Dear Supporters,
It has been a long time since we last shared news about our son, and unfortunately, the past months have been incredibly difficult for our family. Between constant hospital check-ups, rehabilitation sessions, and bouts of illness, it has felt like an endless cycle of challenges. Every day brings new concerns, new obstacles, and a persistent worry about the health and well-being of our little boy, Olek.
On August 26, we spent several days at the hospital in Bydgoszcz for a series of tests focused on Olek’s heart. We were relieved to learn that the results had not shown any significant changes compared to his previous examinations. While this news was somewhat comforting, it was far from the resolution we had hoped for. His condition still requires careful monitoring, and we remain vigilant, knowing that each small step in progress is hard-won and precious.
In recent weeks, we have noticed a growing concern: Olek’s muscle tension has been steadily increasing. He is experiencing spasticity, which affects him daily and causes him significant discomfort. This constant state of heightened muscle tension is both painful and exhausting for him. It also presents a new challenge for us as his parents, as we try to find ways to ease his suffering. Unfortunately, this means that we will need to purchase specialized rehabilitation equipment, which is extremely costly. Such equipment is vital if we are to provide even a small relief from the pain that Olek endures each day.
As parents, it is heartbreaking to watch your child struggle and not be able to fully alleviate their suffering. Olek’s resilience is remarkable—he faces each day with courage far beyond his years—but it pains us to see him limited by his condition. The therapies and exercises that we perform at home are not enough on their own. The proper equipment would allow him to receive targeted rehabilitation and help maintain his mobility, even in the face of increasing muscle stiffness. Every device, every tool, represents hope—hope that Olek can regain some measure of comfort and independence.
Looking ahead, October 20 will bring another daunting challenge. Olek is scheduled to travel to the Children’s Health Center in Warsaw for a series of more detailed cardiological and neurological tests. These examinations are critical for understanding his condition and planning further treatment, but they carry significant risks. General anesthesia, necessary for some of the procedures, raises the possibility of complications, including a temporary halt in his heart function. As parents, the thought of this procedure fills us with fear and anxiety. We know it is essential, but we cannot help the worry that grips us each time we consider it.
Alongside these medical concerns, we have also noticed troubling issues with Olek’s growth. Despite changes in his diet and the addition of vitamins, his weight has stalled at just 10 kilograms. Watching him struggle to gain weight is agonizing. Each kilogram, each gram, is a symbol of his fragility and the fragility of the journey we are on together. His stalled growth reminds us of how much he relies on our care and how critical every intervention is for his health.
Life for Olek is a daily battle, and life for us as his parents is a constant exercise in vigilance, compassion, and perseverance. Every day, we manage a delicate balance: attending to his medical needs, ensuring he receives nutrition, and providing him with love and comfort in a world that is often frightening and overwhelming for such a small child. On top of this, we must coordinate therapy sessions, transport him to appointments, and monitor his progress, all while navigating the emotional toll of seeing him suffer. The weight of responsibility is immense, and we know we cannot manage it alone.
That is why we are reaching out to you. Your support—whether through donations, sharing our story, or simply sending messages of encouragement—gives us hope. It reminds us that we are not alone, that others care, and that together we can provide Olek with opportunities that might otherwise be impossible. Each contribution, no matter the size, is a lifeline. It allows us to purchase the specialized equipment he needs, cover the costs of transportation to hospitals, and ensure that he receives the highest quality care available.
Despite the challenges, Olek continues to amaze us. His courage and resilience shine through even in the most difficult moments. When he smiles, despite the pain and discomfort, we see a reminder of why we fight every day. His laughter, his curiosity, his small victories—they are the sparks that keep us moving forward. We dream of a day when his muscle tension is eased, when he can grow and thrive without constant medical interventions, and when he can enjoy the simple pleasures of childhood that many take for granted.
The journey ahead will not be easy. There will be more hospital visits, more therapies, and more obstacles to overcome. But with your support, we can provide Olek with the resources he needs to face these challenges. Your generosity can help us ease his pain, support his development, and offer him a future filled with hope and possibility.
We ask you to stand with us. Do not leave us to face this alone. Every act of kindness, every donation, every shared message reminds us that we are part of a community that cares. It reminds us that hope exists even in the hardest of times. And most importantly, it gives Olek a chance—a chance to grow stronger, healthier, and happier.
Olek is our son, our joy, and our inspiration. His journey has been marked by fear and uncertainty, but also by courage, resilience, and love. We are committed to doing everything we can to give him the best possible care, but we need your help to continue this fight. Together, we can provide him with the tools, therapies, and support that will allow him to thrive.
Thank you for believing in Olek, for supporting him, and for helping us navigate this challenging path. Every contribution is a symbol of hope, every gesture of kindness a step toward a brighter future for our beloved son.